Weeks 1–2
Pain
Calm the overworked tissue.
Hands-on work and better positioning settle the muscles that have been braking your joints all day.
What We Treat
Joints that go too far. Injuries that come too easily. And physical therapy that has hurt you before. Getting stronger with hEDS takes a therapist who knows where your end range actually is.
Sound Familiar?
Two or more? The longer joints work at the end of their range, the more the tissue around them pays for it.
Why It Happens
In Ehlers-Danlos syndrome, the connective tissue that should limit a joint is more elastic than it should be. Ligaments give a little further than they are meant to. Your muscles end up doing the braking all day long, and they get tired and sore doing a job they were never built for.
That changes how therapy has to be built. Position matters more than load. End range is off the table. Proprioception, your sense of where a joint sits in space, has to be trained before strength means anything at all. Natalie Johnston is a Fellow in Pain Sciences and a Therapeutic Pain Specialist with 24 years of experience, and complex and chronic pain is her stated specialty.
You have already read everything, and you have already had someone push you past a range you cannot control. That is exactly the kind of patient who does well here.
The Honest Truth
Nobody regrets starting too early. Plenty of people tell us they wish they had come in sooner.
How We Fix It
Every plan has an endpoint. Here’s what the four phases look like when your joints move too far.
Weeks 1–2
Pain
Hands-on work and better positioning settle the muscles that have been braking your joints all day.
Weeks 2–6
Prime
You learn where neutral is and how to feel it, so joints stop parking at the very end of their travel.
Weeks 6–10
Perform
Strength and control work stays in mid-range, so muscle takes over the stabilizing job your ligaments cannot do.
Weeks 10+
Prevent
Bracing, pacing and daily mechanics get set up, so a good stretch of months does not end in another subluxation.
Natalie is the very best Physical Therapist my family has ever had. We suffer from Hypermobility Ehlers-Danlos Syndrome (hEDS) primarily for PT services. She addressed all of our health concerns with empathy and knew how to help without causing our bodies further injury which is a huge problem for EDS’ers. We highly recommend her services for everyone! Thank you!
Brenda E. · Family with hEDS
Today: physical therapy is something you are afraid of, for good reason
The goal: getting stronger without paying for it in new injuries
Questions, Answered
Because with hypermobility, position and dose matter more than load. We stay out of end range, train joint control before we add strength, and back off the moment a joint stops holding itself. You are one-on-one with a licensed physical therapist every visit, so nobody is loading a joint they have not watched you move.
No, and anyone who tells you otherwise is selling something. It is genetic, and it is yours for life. What changes is how much control you have over it: stronger stabilizers around the joints that give way, fewer subluxations, smarter pacing, and a real feel for your own end range so the next injury does not happen.
A full plan for Ehlers-Danlos syndrome runs through all four phases, Pain, Prime, Perform, and Prevent, and how long that takes depends on which joints are giving you trouble. Either way, you get a plan with an endpoint: you’ll always know which phase you’re in and what’s left, not an open-ended string of appointments.
Book Your Visit
Request a time and a real person calls you back. No phone tree. No ‘someone will reach out.’ Just a plan.
4.9 · 79 Google reviews
Typical response: under 2 business hours
Step 1 of 5
That’s the hard part done. We’ll call during business hours to lock in your time.
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